About Us
Black Americans have at least double the incidence of myeloma as any other race or ethnicity, and studies show they may also face delays in timely diagnosis and initiation of care and as well as lower access to optimal treatment options, including stem cell transplantation. Further, Black Americans are significantly less likely to enter a clinical trial than White Americans, further perpetuating disparities in quality of care.
In response to these inequities, The Leukemia & Lymphoma Society (LLS) launched a national outreach program in 2017 called “Myeloma Link,” to educate Black communities about myeloma and other blood cancers, help patients access optimal care and navigate the treatment landscape more effectively.
Specifically, Myeloma Link partners with trusted institutions within Black communities to:
- Raise awareness about the disparities in myeloma incidence and treatment, signs and symptoms of the disease, and the resources that LLS offers;
- Provide information and resources that will equip Black myeloma patients and caregivers with the knowledge and tools needed to seek novel, state-of-the art treatments - including clinical trials - in a timely manner.
LLS Campaigns
